Jesus Aceves was born with a rare condition
that means he has thick hair all over his face. About 30 members of his family
also have hypertrichosis making them almost certainly the hairiest family
in human history. They feature in a documentary Chuy, The Wolf Man by film-maker
Eva Aridjis which is being released in Mexico this month.
As a child, the thick, dark hair that covers
his entire face quickly earned Aceves the nickname "The Little Wolf".
He grew up in the small town of Loreto in north-west Mexico where, as a result
of his appearance, his family was shunned by the local community.
By the age of 12 he had started travelling
from city to city to work at fairgrounds. One summer he sold tickets for a
Ferris wheel, another year he ran a stall where people popped balloons to win
prizes. It was there that a circus owner spotted him.
"My life in the circus started when I was
13," Aceves says in Eva Aridjis's film, Chuy, The Wolf Man. The circus owner asked if any other
family members had the same condition - and by this time Aceves' two younger
cousins, Larry and Danny, had also been born with hypertrichosis.
"The man said he'd pay us well and said
he wanted all of us. He said he would house us and there'd be money. I said,
'Yes.'"
The three boys were signed up by the circus
and spent several years travelling around Mexico where they used to greet the
audience and have their picture taken.
Accompanied by Aceves's mother, they always
had somewhere comfortable to stay and plenty of food to eat but there was one
thing that he didn't like.
"We were always locked up. They were
presenting us as attractions so we couldn't be seen on the street. I didn't
like that, being locked up so people wouldn't see us."
As a young child, Aceves had wanted to hide
away. He didn't like going outside and at school he was bullied by other
children, who pulled his facial hair and called him names. But his self-esteem
grew stronger as he grew older. Now, even at the age of 41, he has conflicting
emotions of shame and pride in being who he is.
He says he doesn't regret having worked in
circuses.
"It's not a bad place where you make
money doing something bad. It's a decent job. As an artist you entertain people
and make them laugh," he says.
But there was one tough time, touring the US
with an American circus, when he became seriously depressed. Lonely, isolated,
and unable to speak much English, he almost drank himself to death.
"I used to drink a lot of beer. I would
never eat and my liver was killing me… I wanted to liberate myself with the
drinking. But I was doing the opposite, I was destroying myself," he says.
Fortunately he pulled through and went on to
perform in circuses all over the world.
He learned to walk the high wire as part of an
act in Coney Island's Sideshow and how to walk up a ladder of swords while
travelling with the Circus of Horrors, which brought him to the UK in 2012.
Aceves had hoped to make enough money to set
up a small business near the home he shared with his partner, Victoria, and
youngest daughter, Araceli, in the state of Mexico.
But their 10-year relationship broke down soon
after his return from the UK and he's now back in the family home in Loreto,
earning money by picking beans on a farm.
Aceves and most of his family live in two
houses, next door to each other, that were given to them by the mayor when
Aceves and his cousins were young, because no-one would rent them a home. One
house was for Aceves's mother and the other for Larry and Danny's mother.
Today, each holds about 10 family members.
"Karla is the only one in the family who
has finished high school but she still has a hard time finding work." After
giving birth to a baby, she was abandoned by the child's father. "He's now
in the US, in Texas, and she's a single mother," says Aridjis.
Aceves's great-grandmother was the first of
his relatives to be born with excessive hair on her face. Now about half of his
family has the genetic mutation.
"No-one's really sure what causes
hypertrichosis, or how to cure it. What they do know is that there are about 50
documented cases in human history and it was my fate to be one of them,"
says Aceves. "We are the hairiest family of our species."
In Aceves's family, the X chromosome appears
to be the location of the mutation. "This means that for the men who have
this mutation, all of their daughters will inherit it but none of their sons.
And the women who have the gene, half of their children will also have
hypertrichosis, regardless of whether they're male or female," says
Aridjis.
"Scientists have studied Aceves and his
family. They were particularly interested in this excess of hair because they
wanted to find a cure for alopecia - for baldness. They know it's a gene that
has laid dormant for a very long time which suddenly resurfaces, but they don't
know how to turn it on or off."
Aceves trims the hair on his face and some of
the women in his family shave their faces.
"The women tend to have beards and hair
on their foreheads so it's a little sparser. For the men it's impossible to
shave completely because they have hair on their nose and eyelids. They can't
afford afford electrolysis or anything hi-tech," says Aridjis.
While these other procedures, such as laser
hair removal, would help reduce the total amount of hair, they would not
permanently remove it.
Aceves has not done any circus work for a
couple of years and says he has no plans to return to it in the future.
He is now determined to ensure all the younger
members of his family born with hypertrichosis get an education, and have the
confidence to look for jobs beyond circuses, freak shows and "wolf"
roles.
In the past, some of them have begun circus
work before they can even walk. One of Aceves's nephews, Derian, was one year
old when a circus owner came to their home to make an offer. Derian's mother,
Gladys, had been adamant that her two sons would finish school, but with no
partner to support her she made the difficult decision to let people stare and
touch her son for a small fee.
She spent a few weeks traveling with a
circus, presenting her little boy to the crowds as "Derian from the Wolf
Boys".
Aceves' cousin Danny, with whom he began his
life in the circus, also continued with it and was taken on by a well-known
clown who taught him acrobatics, how to swing on the trapeze, and his favorite
discipline - the trampoline.
Another cousin, Eliud, is thinking about
enhancing his circus act by growing his hair longer and replacing his incisor
teeth with prosthetic fangs. One day he hopes to own his own circus.
Other family members, though, have succeeded
in forging other careers. Aceves's sister Lilia was, until recently, a police
officer in Zacatecas. And his cousin Larry now lives in San Bernadino in
California, where he runs his own business renting out bouncy castles and other
party equipment.
All his life, Aceves has been compared to a
wolf. Sometimes wolf howls follow him down the street. In the opening scene of
Aridjis's film, he visits a zoo in Mexico City in order to see one of the
animals up close.
"Both of our faces are covered in hair
and we both live trapped - them in the zoo and me in this body," he says.
"At least the wolves treat me the same as they treat other humans."
Source: BBC news
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